tag:blogger.com,1999:blog-1314338406312894231.post3453996932367898419..comments2023-10-11T04:14:18.757-07:00Comments on Empowered by hope: A PHA Diary: The special in PHA events...Rinohttp://www.blogger.com/profile/05694594660849018998noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-1314338406312894231.post-86596895199879790902012-07-12T13:42:22.060-07:002012-07-12T13:42:22.060-07:00Thanks Susan. Yes, North Texas and many others. ...Thanks Susan. Yes, North Texas and many others. You are right.Rinohttps://www.blogger.com/profile/05694594660849018998noreply@blogger.comtag:blogger.com,1999:blog-1314338406312894231.post-44893853363745356912012-07-11T16:22:43.871-07:002012-07-11T16:22:43.871-07:00For the last 5 years, the North Texas PHun Walk ha...For the last 5 years, the North Texas PHun Walk has been organized and managed by PH patients, with just a little help from non-patients. This year there are a couple of non-patients helping out (I am one). The PH patients are the driving force and the inspiration for us all. We caregivers and supporters are hoping to ease the burden for the PH patients and help make the event even more successful. When it's time for recognition, they will always be first.SusanKhttps://www.blogger.com/profile/11275024591120227549noreply@blogger.comtag:blogger.com,1999:blog-1314338406312894231.post-4129118260169210062012-07-11T15:31:03.585-07:002012-07-11T15:31:03.585-07:00Good point, although Shannon Munson is a patient. ...Good point, although Shannon Munson is a patient. Had I been writing about the Long Island PH Walk, I would have written about Joanne Sperando Schmidt and her great team from the support group. Had I been writing about heroic awareness efforts in Pennsylvania and Ohio, I might have written about Merle Reeseman. If I was writing about kids making a difference, I certainly could have written about Lucas Van Wormer. As a matter of fact, I've written about each of these patients and many more. This blog was about particular people who I saw together in one room on one day...and the things that they had done that I knew about. While we talk about PHA as an organization of patients, caregivers and medical professionals, I guess that not every piece includes every element in equal proportion.Rinohttps://www.blogger.com/profile/05694594660849018998noreply@blogger.comtag:blogger.com,1999:blog-1314338406312894231.post-27610515472805138812012-07-11T14:44:56.755-07:002012-07-11T14:44:56.755-07:00Why are there no patients listed among those volun...Why are there no patients listed among those volunteers? Surely there are more patients than caregivers who work on these fundraisers?The Truthhttps://www.blogger.com/profile/10933699070255566501noreply@blogger.com