tag:blogger.com,1999:blog-1314338406312894231.post693571520403859536..comments2023-10-11T04:14:18.757-07:00Comments on Empowered by hope: A PHA Diary: Cybercondria and Pulmonary Hypertension AwarenessRinohttp://www.blogger.com/profile/05694594660849018998noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1314338406312894231.post-53283718489230290012015-03-02T13:28:01.437-08:002015-03-02T13:28:01.437-08:00I recently had a right heart cath to confirm a dia...I recently had a right heart cath to confirm a diagnosis of mild PH. I have mitral valve disease (surgery 9 years ago to repair) and my cardiologist has always dismissed PH as my heart "healing" after valve surgery. For 9 years? Come on! I went looking for old reports, and a previous heart cath from 4 years ago also showed mild PH. I am following up with my cardio next week, and I think it's time we start treating it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1314338406312894231.post-79029387735182867102015-02-27T18:04:40.094-08:002015-02-27T18:04:40.094-08:00I started getting short of breath upon climbing st...I started getting short of breath upon climbing stairs and was really had Pulmonary hypertension -- my sister has the disease and I know the symptoms. a local cardiolog with PH and I was freaking out! However, she diagnosed through an echo cardiogram and never requested a right heart catheterization. Long story short: my symptoms were related to allergiesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1314338406312894231.post-87273340635487174242015-02-26T17:20:04.485-08:002015-02-26T17:20:04.485-08:00I was able to self-diagnose PH with the help of We...I was able to self-diagnose PH with the help of Web MD, and I really WAS accused of cyberchondria...until my heart went into congestive failure, and I had to be hospitalized with a "mystery disease". Not surprised to find that, yes, I DO have PH. Better news, though, was my outcome: I have a treatable variety, and the support of family and the PHA. The web diagnosis was pretty grim, and may have helped my "putting off" seeking medical care, since I was afraid of what I'd find. Still, I think having information at our fingertips is only a good development.Anonymousnoreply@blogger.com