Tuesday, May 29, 2012
Taylor's Wish on ABC7
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On Saturday June 2, the Third Taylor's Wish Race 2 Cure PH will take place in Tay's memory in Anaheim, California. The event is ...
Friday, May 25, 2012
Research… a story, a call to action
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This blog is about a shift that is dangerous – and unnecessary – for our country. It offers a story and a call to action from the America...
5 comments:
Wednesday, May 16, 2012
An appreciated award from NORD...
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Last night, PHA was pleased to receive the National Organization for Rare Disorders’ Abbey S. Meyers Leadership Award for 2012. Here...
Monday, May 14, 2012
World PH Day…a first among many
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As a community grows, it develops traditions and opportunities. The First World PH Day – celebrated on May 5, 2012 – offered both of ...
6 comments:
PH in China: From blue lips to great heart...
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For the past year or so, the ISeek Cultural Center in China has been using film to tell PH patient stories. This weekend Yue, a Chinese h...
3 comments:
Monday, April 16, 2012
May 5, 2012: First World PH Day
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In 2010, Juan Fuertes and Irene Delgado of the Asociación Nacional de Hipertensión Pulmonar (ANHP) began a quest. They believed that i...
4 comments:
Friday, April 13, 2012
The amazing adventures of Steve and Lucas...
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A few weeks ago, I wrote a blog titled Pediatric research: the power of one...and a half . It told the story of Steve Van Wormer and his t...
1 comment:
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