The first PHA Conference I attended was PHA's Fourth in June 2000 in Chicago. It was amazing in its connections of patients, families ...

On Wednesday, June 6 Carl Hicks sat at a long table in front of the Senate Defense Appropriations Subcommittee and told his story and made ...

On Saturday June 2, the Third Taylor's Wish Race 2 Cure PH will take place in Tay's memory in Anaheim, California.  The event is ...

This blog is about a shift that is dangerous – and unnecessary – for our country.  It offers a story and a call to action from the America...

Last night, PHA was pleased to receive the National Organization for Rare Disorders’ Abbey S. Meyers Leadership Award for 2012. Here...

As a community grows, it develops traditions and opportunities. The First World PH Day – celebrated on May 5, 2012 – offered both of ...

For the past year or so, the ISeek Cultural Center in China has been using film to tell PH patient stories.  This weekend Yue, a Chinese h...