Monday, July 23, 2012
From a kitchen table to around the world...
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Last year, Mike McGoon , our former board and Scientific Leadership Council chair and a cardiologist specializing in PH at the Mayo Clin...
7 comments:
Wednesday, July 11, 2012
The special in PHA events...
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Each year there are about 60 events held throughout the U.S. to benefit PHA research and patient serving programs. We call these speci...
4 comments:
Wednesday, June 27, 2012
Conference 2012!
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The first PHA Conference I attended was PHA's Fourth in June 2000 in Chicago. It was amazing in its connections of patients, families ...
2 comments:
Monday, June 11, 2012
Carl Hicks, an advocacy hero
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On Wednesday, June 6 Carl Hicks sat at a long table in front of the Senate Defense Appropriations Subcommittee and told his story and made ...
4 comments:
Tuesday, May 29, 2012
Taylor's Wish on ABC7
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On Saturday June 2, the Third Taylor's Wish Race 2 Cure PH will take place in Tay's memory in Anaheim, California. The event is ...
Friday, May 25, 2012
Research… a story, a call to action
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This blog is about a shift that is dangerous – and unnecessary – for our country. It offers a story and a call to action from the America...
5 comments:
Wednesday, May 16, 2012
An appreciated award from NORD...
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Last night, PHA was pleased to receive the National Organization for Rare Disorders’ Abbey S. Meyers Leadership Award for 2012. Here...
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