Thursday, January 17, 2013

PH + [Your Condition Here] + People Who Understand

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PH and Lupus This week I had the chance to see a great set of four new PHA videos in which patients and doctors talk about their experie...
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Monday, December 31, 2012

As we begin 2013…an important new direction for PHA

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Carl Hicks, Bette Perez, Lisa Beth Gansberg, Gina Parziale, Rino Aldrighetti Almost exactly one year ago, I began an important new conve...
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Thursday, December 20, 2012

As we close 2012, a request to you…

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As we close this year, I can only think back to where PHA started years ago.   How much has changed during the past decade.   How much has...
Tuesday, December 18, 2012

Conference 2012...a view from China

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Patients,family members and medical professionals from 30 nations registered for PHA's Tenth International PH Conference in Orlando in...
Saturday, December 8, 2012

Sometimes those that have lost the most give most back...

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Sometimes those who have lost the most give most back... Those were the words of the Fox 8 news anchor in Winston-Salem, N.C. as he inte...
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Wednesday, November 28, 2012

Steve Van Wormer's path of pediatric PH...6 years later

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The following guest blog was written by Steve Van Wormer on the anniversary of his son's diagnosis with PH. Thank yoiu Steve, Lucas an...
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Monday, November 19, 2012

Awareness Month: Voices from the PH Community (#7)...

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Last Tuesday, November 13, we had our annual Congressional Luncheon.   It is always held on Capitol Hill and this year was in the Dirsksen...
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