Did you know that there
is a bill in Congress dedicated to making life better for people with PH? It’s
called the Pulmonary Hypertension Research and
Diagnosis Act and was introduced by
our friends Reps. Kevin Brady (R-TX) and Lois Capps (D-CA). Sen. Bob Casey
(D-PA) is working on a Senate version to be introduced this month.
Some of you may be
familiar with PH legislation from previous years, but our new bill is completely
different. What's important about it in the current legislative environment is that it’s designed to make a big impact
without asking the government to spend any new money.
The bill may be new, but
its success still depends on you. Take a look at the guest post below from PHA’s
Grassroots Campaigns Manager, Elisabeth Williams, to learn more.
PHers Educate Congress on New PH Legislation
Taking a stand together to advocate to Congress about PH is
standing together to save a life.
We need more early diagnosis, more education
in the medical field, more affordable treatments.”
--Nicole Cooper, PH patient
This spring, Reps. Kevin Brady (R-TX) and Lois Capps (D-CA)
introduced a new bill called the PulmonaryHypertension Research and Diagnosis Act of 2013 (H.R. 2073) in the House of
Representatives (H.R. 2073). Since then PHers have been emailing, calling and scheduling
visits with their Members of Congress to educate them about how this bill will
improve life for those living with pulmonary hypertension.
This budget neutral bill calls for
the creation of a committee within the federal government focused on giving
people living with PH longer, better lives. The group, including representatives from NIH, the Centers for Disease Control and the Department of Health and Human Services would work together to:
- Advance
the full spectrum of PH research from basic science to clinical trials
- Increase
early and accurate diagnosis of PH
- Educate
medical professionals and the public
So far, these efforts have resulted
in several Members of Congress co-sponsoring
the bill, including:
Rep. Timothy Bishop (D-NY)
Rep. Jim Costa (D-CA)
Rep. Peter King (R-NY)
Rep. Richard Neal (D-MA)
Del. Eleanor Holmes Norton (D-DC)
Rep. Devin Nunes (R-CA)
Rep. Peter Roskam (R-IL)
Stand
Together and Advocate!
The
success of this bill depends on you! Join other PHers who are standing together
to push this bill through Congress. Here’s how:
1)
Contact Your Members of Congress! Educate your own Member of Congress and
ask him or her to co-sponsor the newly
introduced Pulmonary Hypertension Research and Diagnosis Act of 2013.
It’s easy! Simply send an email using PHA’s new online advocacy tool. All you have to do is add your name and zip code and click on Take Action. That will show you your Member of Congress. Then just take a
few minutes to personalize the sample letter with your PH experience. With that brief effort you'll be maki9ng a big difference in helpong your Member of Congress
understand the need for more treatments and early diagnosis.
(Oh, and if your Member of Congress is one of those listed above...change the sample letter to just say Thank You for supporting the Bill!)
2) Sign up for the 435 Campaign! Stand with other PHers who are
working to ensure that
all 435 Members of Congress support legislation critical to the PH community.
We’ll give you the tools to help you easily share your story and make PH more
visible in Congress. Email Elisabeth at Advocacy@PHAssociation.org to join the 435 Campaign.
3)
Stay
in the know! Stay up-to-date on late-breaking
Congressional news and opportunities to advocate for PH legislation. Sign up for
PHA’s monthly Advocacy in Action Alert emails
Chapter executive director, Gina Parziale, to let her know that PHA has been included in the Charity Finds section of People StyleWatch. 
