Sometimes those that have lost the most give most back...

Sometimes those who have lost the most give most back...

Those were the words of the Fox 8 news anchor in Winston-Salem, N.C. as he interviewed PHA advocacy leader and Board member Diane Ramirez.

It's true. So many of those in our community take what life has put in their path and grown heroically. The segment where Diane appeared is titled Inspired Living. It usually runs 60 to 90 seconds. Diane's interview runs two and a half minutes. Beneath the video Diane is described as "a woman who didn't give up, so others may not have to either."  The PHA website appears below those words, creating greater awareness of PH.

Congratulations and thank you Diane. You are a model for us all.

View the video

Telling the story...

Without our stories, we are unknown.

Without our stories, no one cares.

That's why building awareness of PH is a key element of our work.

For over a year PHA has been working on a connection with the New York Times.  Last week, PHA patient and advocacy and awareness volunteer extraordinaire, Diane Ramirez, broke through...in a big way.  She proved the power  that one person with a compelling story has to make a differnce.

Patient Voices is a well promoted and highly trafficked feature on the NYT website.  And Diane's voice is now there and can be heard loud and clear.

Yesterday, Diane wrote to say that she had just completed another interview with Health Monitor magazine that is expected to be ready for the February issue.  She's now training her sights on Ladie's Home Journal and Woman's World.  Go Diane!

Like anything else, building awareness is a learned process.  It's something anyone with the interest can do...and PHA can help.  If you are interested in finding out how you can get involved in getting your local media intersted in talking about PH, visit the PHAware pages on PHA's website or contact Elisabeth at PHAware@PHAssociation.org for tips, ideas and free media materials.

And the media isn't the only place you can tell your story.  Over 200 are posted in the Our Journeys section of the PHA websire...and with the click of a button, you can post yours there, too.