Each year there are about 60 events held throughout the U.S.
to benefit PHA research and patient serving programs.
We call these special events but it's really the people who
are special.
As I write this, I am halfway home - sitting in Dallas-Fort
Worth Airport - from a golf tournament in Aliso Viejo, California.
Golf is golf (I can say that as a non-golfer) but this
tournament was an act of love. The Wojciechowski family writes on
the tournament website...
It
is with extreme pleasure that we invite you to participate in the 5th annual
Swing 4 the Cure - Wojo PH Golf Classic on MONDAY – July 9th, 2012.
This charity tournament is held in memory of Jerry Wojciechowski, my
wonderful husband and friend and in memory of our two sons Michael and Matthew.
All three lost their battle with Pulmonary Arterial Hypertension too soon and
will never be forgotten.
We are pleased to announce that we will be holding our tournament at the
exquisite Aliso Viejo Country Club Aliso Viejo, CA We anticipate that this
event will be a great success and will be fun and memorable for all who
participate. Since 2008, this event has raised over $160,000 in research funds!
Betty Lou Wojciechowski (Wojo) has led her family (especially her adult daughter and event partner, Michelle) and friends to organize
these events for the love of her husband and two children who she has lost
to this terrible disease but also for the love of those still living with PH.
During the past decade or more I have seen her organize and lead support
groups, turn her family's story to one of inspiration and hope for so many in our
community, draw others into action to create a better today and tomorrow and, as
her website says, raise over $160,000 for PH research.
Betty Lou is a living example of "the power of one" to make a
difference.
But she wasn't alone in the post tournament dinner of 200 or so. Mixed in
with golfers, relatives and friends were many other amazing people.
There was Jack Nino. Jack lost his fiancé to
PH a decade ago. Ever since, Jack has come to PHA's International
Conference and volunteers to work the whole time in our store. He also
organizes a very successful golf tournament in Las Vegas.
...And Darren Bell who, after the loss of his
sons went on to lead and help shape our partner and friend, PHA Canada as its founding board president and board chair.
...And Shari Caffrey, whose fulfillment of
Taylor's Wish has grown in three short years from a 5K walk/race to a community
celebration of the possible.
...And Steve Van Wormer whose talents and
instinct have brought our community the ability to deliver new levels of PH awareness to our fellow citizens.
...
And, Shannon Munson and her husband, Rob, who together moved the
audience with their PH journey fromn her diagnosis to despair to hope
I could go on for a long, long time but I think I've made the point...it's
the people who make the choice to give of themselves, to fight back who are -
or maybe I should say, become - special.
