Monday, March 14, 2011
Honoring his father...
PHA Norway President, Hall Skåra sent us this video earlier today. Those of you who were at PHA's 2010 International Conference may have met Hall and his family or remember his great mountain-climbing story from one of our plenary sessions.
Hall's son, Nils-Paul (a former guard at William and Mary in Virginia) is now back home, continuing to play basketball and using his talents to help build PH awareness in Europe.
As you'll see from the video, Nils- Paul's whole team Baerum Basket played a key game (they won!) with Blue Lips as part of PHA Europe's effort to mark Rare Disease Day and to honor Nils-Paul's father.
They created a lot of publicity about the event in pre-game newspaper ads, local articles and an appearance on national TV. Now that they’ve just made it to the semi-finals, there should be even more interest!
It's a great story. Many thanks to our friends in Norway for subtitling the video in English (and to Bayer for helping PHA Norway get it made) and sharing it with us here in the U.S.
Oh, and for those who'd like to learn a little more about PHA Norway and hear Hall's thinking on developing patient education as an empowerment tool, you can see and listen to his presentation at our International Leaders Symposium this past June.