Tuesday, September 4, 2012

Living life: Savanha, Katie Grace and Kathy...

This blog is a little late coming but it's a story worth telling...

For her 14th birthday party earlier this year (and the previous 2) Savanha Groebner asked friends and family members to make donations to PHA instead of giving her gifts. Savanha’s little sister, Katie Grace, has PH.
This year, Savanha and her friends went around their town on a scavenger hunt.  This is what it said on the cards she handed out:

“At 9 years old I found out my baby sister, Katie Grace, had pulmonary hypertension. We were told she had 1 year to live. I met other families facing the same challenges. I now stand with them in HOPE for a CURE. My goal is to be a cardiologist and a PH specialist. I do all I can to help. This is my 3rd birthday I have asked my family and friends to donate to PHA in lieu of a gift.”

Yes, Savanha and Katie Grace are an special - and so is their mom. A friend sent me Kathy Groebner's video, titled What About Me? today and that's what got me thinking about this inspiring family.

With all the things our community goes through, people keep creating and building.  If that's not life, I don't know what is.


  1. Thank you for sharing all of this. My family could never do any of this if it was not for all of you... You give us HOPE that we would never have if PHA did not exist. I wish there was more I could do.

    1. Thank you so much. Together we are community. Together we are stronger.

  2. So inspiring to see this little girl fighting ph.:) I wish i always brave enough like her..since i was also a PH patient from the Philippines.