|PH and Lupus|
|PH and Scleroderma|
Some of the key facts I learned through the video series included:
· About 5 in 1,000 Lupus patients develop PAH. It is critically important to do further testing to determine if it is PAH causing the shortness of breath. Lupus can affect the heart, heart valves, lung and muscles that surround the lung and chest wall.
· 1 out of every 200 HIV patients develops at least mild PH.
· PAH is a common complication of scleroderma. Between 8 to 12 percent of all scleroderma patients develop PAH.
But beyond the medical facts, the videos feature the provocative personal stories of patients and medical professionals in a very accessible way. Here are some highlights:
|PH and HIV|
· “Scleroderma and PH is not my identity ... If your sickness becomes your identity, then you don’t have a shot. You have to surround yourself with people that do not make you feel sick.” - Tammy Gilbert
|PH and Congenital Heart Disease|
If patients experiencing and doctors treating scleroderma, CHD, HIV or lupus know that there may be an increased risk for PH, there may be a reduced time to diagnosis. And, as we know from the Sometimes It’s PH campaign, when patients with PH are diagnosed early, they have improved chances for a better life.