Wednesday, March 19, 2014

Be Brave... and Take a Simple Action

The first time I heard Chloe Temtchine sing was on Nov. 12, 2013. It was at the inaugural O2 breathe Gala, hosted by PHA’s Greater New York and Philadelphia Chapter. The performance was quite impressive. Chloe’s talents are great and so is her spirit, and now she is asking all of us to take a simple action to further the PH cause. I’d like to tell you how you can help.

Diagnosed in March 2013 with a rare form of pulmonary hypertension (pulmonary vascular occlusive disease, PVOD), Chloe almost immediately began fighting back. She uses her great performing skills to help fight for awareness, and she also uses her humor. As she introduces her band, she also introduces her necktie-wearing oxygen tank as Steve Martin.

Now Chloe is turning her amazing song of inspiration, “Be Brave,” into an opportunity for PH awareness.

For the past several weeks, she has been talking on camera to some very special patients and family members, including Anna Volino and Anne Sperando, about what it means to be brave. Their stories are powerful.

Working together, PHA and Chloe and her husband Marvin are taking action to increase PH awareness.

On March 29, we are asking that EVERYONE go to the iTunes store and download “Be Brave.” The cost is 99 cents, half of which will go to PHA. But the reason to take this action is much, much more important. When many downloads happen in a short period of time, iTunes gives the song and the performer much more visibility… and that visibility will translate to press and awareness.

So mark your calendar to download “Be Brave” by Chloe Temtchine on Saturday, March 29. Tell your family, tell your friends.  It’s a great song and, with your help, one that will make a difference!

1 comment:

  1. Im looking forward to hearing your music Chloe. My friends and family will embrace your gift in many ways. This music release will showcase ability,not disability, send a message of hope in an otherwise helpless feeling as there are not many treatments that give hope to present patients,and it offers.a "can do" opportunity to so many who are forever asking "what can I do?". The O2 Breathe walks are often far away from our town. This simple act of support will give power to those feeling useless in the fight. I have a.busi.ess Im currently starting up where I create original fashion designs, unique artwork, and other items for sale. All proceexs will go to the PHA for research efforts. It will be named Homosassa Road, after a city in Florixa my husband and I visited on a trip last spring. He married me after I was diagnosed and is so supportive and brave. My hero. Thanks for your motivation and loyalty.