Here is a guest blog from Emma Bonanomi. Emma has been working on developing PHA's new targeted programming for newly diagnosed patients, young adults, patients with associated diseases, family members of adult patients and family members of children with PH. The newest step is PHA's mentor program. Here's what she writes about it...
From Anna in Colorado, living with PH, scleroderma and lupus; to Bill in Boston, with a teenage daughter who was diagnosed with PH in kindergarten; to Colleen in New York, diagnosed with PH in 1975 and eager to answer questions about her experiences with supplementary oxygen, there’s no doubt that the PHA Mentors represent a broad range (if not the A to Z!) of backgrounds and experiences.
Take Joni, a loving husband and father in Jerusalem whose wife was diagnosed with PH in 1998. On top of his commitments as a caregiver and as chairperson of PHA Israel, Joni was so dedicated to helping other PH caregivers that he stayed up until 3 a.m. Israel time to participate in a mentor webinar training. And take Liz, a PH patient from North Carolina who drove 30 miles to the nearest McDonald’s for Internet access to prepare for the Mentor Program while she was receiving treatment in Minnesota.
Visit www.PHAssociation.org/Mentors to email a patient, parent or caregiver mentor. (Mentors are available for case-by-case questions or for email relationships up to three months in length. Free PHA website sign-in is required to view mentor profiles.)