Taylor's Wish Race 2 Cure PH will take place in Tay's memory in Anaheim, California. The event is organized by Taylor Caffrey's family and friends in her memory, raising funds for PH research and parient support programs.
The Caffrey family also does incredible work in building awareness of PH (as you can tell from the donated billboards that started popping up maround Los Angeles a few weeks ago).
Recently, Steve and Lucas Van Wormer have been partnering with Tay's mom, Shari Caffrey in media efforts and this ABC7 news report is a spectacular result.
One of the exciting things about this news report, which also included Dr. Juan Alejos, is that ABC7 included a public service announcement (PSA) video that Steve and Lucas recently made using a Lantos grant from PHA. The station easily pulled it from YouTube.
We'll soon be adding Steve's video PSA's to our media page which already has his audio PSAs and to our media guide page. As soon as we do, I'll be blogging about a story that Dr. Mike McGoon told me last week. He used a free hour to get his local TV station to agree to air our new awareness PSAs.
Good luck to all the great folks who organize Taylor's Wish. I know it will be a great day!