Monday, November 8, 2010

Kicking Off Awareness Month in Style...

Here’s a guest blog from PHA staffer, Katie Kroner. Awareness Month is an organization-wide event at PHA, but if you have questions about how to get involved, Katie and her team in the Advocacy and Awareness Department are a great place to start…

The PH community has grown and evolved over the years, and so has Awareness Month, but one thing hasn’t changed. Raising PH awareness is about sharing your story. No matter who you are.

Carol Lindstrom knows the importance of PH education. When she was finally diagnosed, it was because her doctor had recently read an article about the disease and referred her for a right heart cath. This week, Carol and her daughter, Cindy Klein, kicked off Awareness Month in style—they advertised their special event and shared information about the symptoms of PH on TV and in two newspapers.
Here’s Carol and Cindy on KMTV Channel 3

As members of the PH community, we’re part of something big. Dr. Michael McGoon says, “You immediately feel, once you have identified other patients with pulmonary hypertension or other physicians that are dealing with it, that you are a member of a common family directed towards a very focused and consensual goal — to cure this thing.”

During Awareness Month, we’re telling the world our goal and asking them to lend a hand in our climb toward a cure. I hope you’ll join us!

P.S. Special events are just one way to raise awareness about PH, so the fact that Phenomenal Hope for a Cure was one of seven fundraisers that took place this past weekend tells you something about our Awareness Month momentum. From the Inaugural Patrick Garcia Memorial 5K in New Mexico, to the 3d Annual Baltimore PH Walk for Hope, to the 10th annual Stanford Race Against PH, we’re raising awareness coast-to-coast. A calendar of upcoming PH events is available at

1 comment:

  1. Hey PHA we kicked off Awareness month by having our City of Clayton CA Proclaim a city wide declaration to PH Awareness Month. The following Weekend we went to the Race Against PH at Stanford. Then Today My Women's worship (W.O.W)Group made an announcement and all Puckered Up 4 PH. The Months not over yet. Don't forget keep on the Purple!!!