Awareness Month: Voices from the PH Community (#5)...

Here's another guest blog.  The McNiff family inspired PHA staffer Ellen Leoni to write...  

After Britt and Sean’s 4½ year old daughter, Mimi, was diagnosed with PH, they found support through a parents’ PH group on Facebook. Britt says, “Seeing what other people were creating for awareness was sometimes shocking but always validating and inspiring.”  

Not long after, Britt was empowered to fight back by raising awareness and funds for the Robyn Barst Pediatric PH Research and Mentoring Fund by running the Smuttynose Rockfest half marathon in Hampton, New Hampshire. Through their personal fundraising page, Facebook and email, and with passion and dedication, the McNiffs raised more than $12,600 in honor of Mimi and in support of pediatric PH research.

PHA’s strength comes from community members like the McNiff’s who are dedicated to fighting this disease and finding a cure for pulmonary hypertension. Watch this incredible video of the McNiff family as they all prepared for Britt to run the half marathon... 

This is number 5 in an Awareness Month series on the Empowered by Hope blog.

You can make a difference, too.