Tuesday, April 20, 2010

And that's how awareness grows...

PHA hosts over 20 message boards and lists servs.  Many support the work of various committees, while others are active sources of broad communications for various segments of our community.

Lately, there's been a lot of buzz on the support group list servs about two pieces of video involving support group leaders.

Ellen Harris, a support group leader from Northern Virginia, is featured on a PH segment on the PBS show, Healthy Bodies, Healthy Minds (scroll down to episode 1506).  North Carolina support group leader Doug Taylor reported that WTVI in Charlotte, NC also had a recent program on PAH. (Once on the page use the arrow at the bottom to scroll down to the Pulmonary Hypertension show). Host Joey Popp interviewed cardiologist Theodore Frank, MD, and pulmonologist Doug Kelling, MD as well as local PH patients (and twins) Linda Miles and Brenda McCallum.

Then there's the continuing coverage of the Kilimanjaro Climb which has generated over two million readers and viewers across more than 70 articles and features.  I'm sure you'll enjoy one of the most recent from WQED in Pittsburgh.

While the PH community may not be large compared to other diseases, our drive to get our story out is creating awareness and opportunities beyond our numbers.

I hope you'll take a moment to find ways to get involved through the Awareness pages on the PHA website. It can make all the difference.

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