Thursday, April 29, 2010

National Journal today...

A few weeks ago Donna Pederson, a 24 year old PH patient and nurse, PHA's good friend Congressman Kevin Brady and I agreed to a video interview with the National Journal.  Their video publications are available to all Capitol Hill offices (and heavily trafficked by them), as well as to other subscribers.

I thought they did a pretty good job with the exception of reporting patient survivability at 2.8 years for 50% of patients. That number is true for patients not on medication. With 9 treatments availble - 8 since 2001 - survivability continues to improve.

At any rate, here's the video.  See what you think.


  1. Rino,

    This is very good!

    Do you guys have a copy of the "Healthy Bodies, Healthy Minds" segment we did at Inova Fairfax?

  2. Thanks...and, yup, I did a blog on that a couple of weeks ago. It's titled, "And That's How Awareness Grows"...and can be found at