A few weeks ago Donna Pederson, a 24 year old PH patient and nurse, PHA's good friend Congressman Kevin Brady and I agreed to a video interview with the National Journal. Their video publications are available to all Capitol Hill offices (and heavily trafficked by them), as well as to other subscribers.
I thought they did a pretty good job with the exception of reporting patient survivability at 2.8 years for 50% of patients. That number is true for patients not on medication. With 9 treatments availble - 8 since 2001 - survivability continues to improve.
At any rate, here's the video. See what you think.