Thursday, April 29, 2010
Candid Reflections on Lung Transplantation...
As a high level sponsor of the ISHLT Conference, Gilead Sciences had the right to this block of time but decided a PHA presentation would be more appropriate. They covered the costs for the lunch event and we accepted and developed the content.
I opened with a slide presentation titled Blending the Patient and Medical Communities: The Pulmonary Hypertension Association Model. Truth be told, it was really more about it's subtitle,,,Heroes. I told brief stories about individuals like Bonnie Dukart, Diorothy Olson and Barbara Smith, people who by their actions made a difference and built this organization.
Following that, we presented a video PHA developed in 2005, featuring stories of patients experiences pre and post transplant. I hadn't seen it myself in quite awhile and found it quite moving. One of the doctors who saw it suggested it would have value as a training tool for medical professionals coming into the field. I think we'll explore that possibility.
We were fortunate to have Dr. Reda Girgis of Johns Hopkins conclude the program with a presentation on Challenges in Lung Transplantation for PAH. He educated the audience on a number of transplant issues specific to PH patients.
It was a goos session and a great chance to introduce the work we are doing to the transplant community.