Katie Kroner, our Advocacy and Awarenss Director and I took a trip to Capitol Hill today to support the Scleroderma Foundation as they held their first Congressional Luncheon. The bonus for me was that it was held in the Jefferson Library of Congress Building, a beautiful structure, which I had never visited before.
Rep. Lois Capps - a leader on both PHA's and the Scleroderma Foundation's bill made the take-away point of the day for me when she said,
"Your stories are the reason we will ultimately pass your legislation...This is democracy...Tell your stories."
Rep. Capps is a nurse as well as a Congresswoman and had addressed about 100 PH Resource Network nurses at their Lobby Day on September 24. I missed that, attending our Scientific Leadership Council meeting that same day. It was good to hear her on target message today.